Hi, Things have gotten exponentially harder in last few weeks. I needed a few paracentesis drains (stick catheter in and drain excessive fluid in abdomen) in shorter and shorter increments at hospital.
A week ago 5.5 liters were removed. This process then was going to need to happen again after only ten days. The fluid is coming from my liver because of the cancer.
I was admitted to hospital Wednesday and had a Tenckoff catheter put in. I was not a candidate for the Denver shunt because my platelets run too low and an internal shunt would be dangerous.
They removed another 5 liters of fluid at surgery. Now I have a catheter that allows me to drain myself at home. But, so much fluid removal in short period messes with electrolytes, BP, etc. and makes you feel rotten until you get equilibrium.
Still cannot walk — no change predicted in short order. We are installing ramps, bought wheelchair, etc.
For now that is all I have energy to update but should give you sense of where things are.